Overdue Update
This week I am to have my second MRI since first experiencing my episodes last summer. Its been almost a year since I first felt the weakness, tingling and numbness in my right arm and leg. Thankfully I remain symptom free as of the beginning of December. At the end of one of my last posts, I mentioned that I was trying to get an appointment at the Vanderbilt MS Clinic. I have been very happy with my decision and very happy with my new doctor. Dr. B is very attentive and makes me feel at ease. I have been to the clinic a few times since April and have had various tests completed since then. Some of these were to verify my eligibility for a certain treatment plan, and some were to help Dr. B see the extent of damage already done to my nerves. Several times Dr. B has told me that she is mostly sure that my original diagnosis was correct, but she has also been open about a few doubts she has. Apparently the way my symptoms had manifested themselves in little bursts is not typical for MS patients. Once a relapse or flare-up begins, the symptoms are normally constant for those weeks or months that they are active. She has said that what I described as my symptoms almost sound like miniature seizures.
During my last appointment, Dr. B suggested that I have another MRI before I begin treatment. There was still something about my symptoms that didn't sit well with her. Since my first MRI was back in October, she thinks it is a good time to see if there has been any progression or if the spots are more defined. After an initial denial of coverage from my insurance company for my preferred treatment, everything is finally ready to go. However, to her credit, Dr. B doesn't want me to start treatment until she is absolutely sure that we are treating the correct thing. She has suggested that if this week's MRI isn't clear, she may want me to have a lumbar puncture (spinal tap). For obvious reasons, I'm really hoping that the MRI is clear.
I believe in the power of prayer. If you are a praying person or even if you are willing to send positive vibes my way this week, it would mean a lot.
There are many more things I have to share, with the hope they may help others with MS or friends and family of MS patients. However, I don't currently have time to post them all right now. In the meantime, if you have any questions, I'm more than happy to answer what I can directly. Feel free to contact me via Facebook, Twitter, Instagram, or Email.
Comments
Post a Comment